Resources

Useful Resources

This list will grow and change over time, so check back on a regular basis. 

Please be aware that the resources listed herein are provided as a convenience to our website visitors. Inclusion in this list does not mean that we are endorsing a particular site, supplier, individual, or brand, nor does it imply that we are responsible for any aspect of the content made  available through these links. We are merely facilitating access to resources we think might be of interest to our members and website  visitors.

For a list of past presenters and guest speakers at our regular meetings, please go to the Presenters page.

Click on any of the categories below to learn more:

Adapting to life as an amputee (websites)

1/16  Amplitude Media – http://www.amplitude-media.com/
This new, independent community is dedicated to providing current, in-depth, and relevant news, information, and resources about preparing for, adapting to, and living with limb loss for individuals with amputation, and their families, caregivers, and healthcare providers.

1/16  The Amputee Coalition – http://www.amputee-coalition.org/ 
Lots of useful information on this website, some of which can easily be printed. See the tab “Limb Loss Resource Center.”  You can also read their magazine “In Motion” online or subscribe to it. In addition, they have a guide – called “First Step” –  you can order that has many, many useful articles in it. The bulk of the online resources are listed within the tab called Limb Loss Resource Center. Check out the section on Resources by Amputation Level. You could also contact this organization to see if they can set you up with a Peer Visitor.

1/16  Amputee Empowerment Partners – http://www.empoweringamputees.org/
Lots of ways to learn about life as an amputee from community members.

1/16  Orthotics and Prosthetics Online Resource – http://oandp.com/ 
This is THE site for consumers and O&P professionals. Among other things, there are product directories, reference materials, classified ads, articles, and email discussion list for visitors asking questions or providing information. It’s easy to spend hours at a time reading and hunting through all of this site’s content.

1/16  Phantom Pain – From Mayo Clinic, Special to CNN – http://www-cgi.cnn.com/HEALTH/library/DS/00444.html
This is an article about treating phantom pain effectively with medications and other therapies.

1/16  War Amps National Amputee Centre- http://www.waramps.ca/nac.html/
The War Amps site is operated by a Canadian charitable organization run by war amputees. There’s plenty of useful information for amputees of all ages and their loved ones.

Books, magazines, and other readings

Books:

Most of these titles are readily available on Amazon.com and several other bookseller websites. (Month/Year the resource has been added to this list is shown before the title) 

9/16  Beautiful Barrier-Free: A Visual Guide to Accessibility — Cynthia Leibrock with Susan Behar
From space planning, to walls and ceilings, to furniture and accessories, this book demonstrates hundreds of easily adaptable designs and products for: ramps, stairs, and elevators; electrical, mechanical, and acoustical equipment; doors and windows; decorative accessories and appliances; floor coverings; kitchens; bathrooms and utility spaces.

6/16  Fundamentals of Amputation Care and Prosthetics — Douglas Murphy
Written by expert physiatrists, prosthetists, and therapists, this book provides an intro to the field of amputee care and prosthetics.

1/16  Just One Foot: How Amputation Cured My Disability – Judy  Johnson Berma   
This is a first-person account about growing up with a limb difference and the decision to amputate.

6/16  Life on Wheels, 2nd ed; the A to Z Guide to Living Fully with Mobility Issues — Gary Karp
This book offers a road map to navigating the lifelong, complex, and fascinating road of the disability experience. It offers practical information on how to adapt your home, choose a wheelchair, take care of your body, explore your sexuality, getting out and about, travel, and more.

1/16  Living With a Below-Knee Amputation; A Unique Insight From a Prosthetist/Amputee – Richard Lee Riley, CP, BS
Insightful book covering the full range of topics related to below knee amputations such as: planning for an amputation, the terminology of prosthetics and experiences of people who wore them, legal issues, and a variety of useful resources.

1/16  Lower Limb Amputation – Dr. Adrian Cristian
This book covers topics related to life as a new amputee and all it entails.

1/16  Phantoms in the Brain: Probing the Mysteries of the Human Mind – V. S. Ramachandran
Many amputees will to some degree experience phantom sensations or phantom pain. Learn what it means to have “a phantom” and what can be done to decrease its effect. 

1/16  You’re Not Alone: With the Stories of 38 Remarkable Amputees Who Conquered the Challenges of a Lifetime – John Sabolich
Inspirational recounting of life experiences by amputees. The book is a bit outdated but still very relevant.


Magazines:

1/16  AMPLITUDE magazine – http://www.amplitude-media.com


1/16  CHALLENGE magazine – online or print –http://www.disabledsportsusa.org/resources/challenge-magazine/

1/16  inMotion
Published 6 times per year by the Amputee Coalition, this magazine was once a paid subscription, but is now available at no cost, or as a free online resource on the Amputee-Coalition.org website.  http://www.amputee-coalition.org/limb-loss-resource-center/publications/inmotion/index.html

1/16  New Mobility
New Mobility, a subsidiary of United Spinal Association, publishes this monthly magazine for wheelchair users. For more information, go to their website at NewMobility.com.

1/16  O&P EDGE magazine –http://www.oandp.com/edge/services/subscription_validate.asp

Resource Guides:

1/16  Limb Loss Resource Guide
Created by Amplitude Media, this guide provides a wide range of information that is useful for all amputees.

Medical and Professional Services

7/17  A to Z Mobility in Plainfield, IL. A to Z Mobility provides a variety of services to help you adapt your home to suit your needs.

1/16  Center for Identity Potential in Park  Ridge, IL. The Center is a private practice that focuses on people with “exceptionalities.”  

4/17 Greater Chicago Advocates asks: Are you struggling to manage a medical crisis? Need someone to help you navigate through all the red tape?

6/16  Home for Life Advantage, Inc. provides a variety of services to adapt your home to suit your needs. Services include ramps, thresholds, stairlifts, chairlifts, ceiling lifts, bathroom remodeling, grab bars, barrier free showers, kitchen modifications, door widening, in-law suites, etc. Free home assessments are also provided.

6/16  Law offices of Rabin, Kodner & Brown has focused its law practice in the representation of disabled individuals seeking benefits under the Social Security Act. Their attorneys have devoted their practice in helping those who are living with disability to secure the benefits they need from the Social Security Administration (SSA). They are solely focus in helping clients successfully navigate the complex bureaucracy, rules and procedures of the SSA. Free consultations are available.

6/16  L. Bradley Schwartz handles all types of civil litigation including insurance claims, personal injury, insurance coverage, medical malpractice, automobile accidents and work injuries. After a medical crisis that resulted in the loss of his hands and legs, Mr. Schwartz focuses on medical malpractice, personal injury, patient advocacy and insurance litigation. He immediately volunteers his legal services to Chicagoans who are in need of quality legal representation but are not able to afford a high-priced lawyer. In 2014 Mr. Schwartz was honored by the Chicago Legal Clinic, Inc. with the James D. Jacobson Memorial Award for his outstanding efforts in making the legal system accessible to those in need.

 

Medication & Medical Devices

11/16  DrugWatch Aimed at informing and educating the public on dangerous and defective drugs and devices, Drugwatch provides up-to-date news and comprehensive guides on over-the-counter and prescription drugs and medical devices that are on the market. In addition to helping spread awareness, this advocacy group provides health information, radio podcasts with medical experts on defective drugs and devices shown to cause life threatening side effects. Information on FDA alerts & recalls and litigation is also provided. 

Prosthetists and Prostheses

PROSTHETISTS

In alphabetical sequence, here are some of the professionals that our members use:

7/16 Hangar Prosthethetics serves our members in the Chicago area from approximately 30 offices and locations

7/16  McKinney Prosthetics, an SRT Company, has two offices in Lake & McHenry Counties in Illinois, and two offices in Kenosha County in Wisconsin.

7/16 Scheck and Siriss has over a dozen offices serving the Chicago metro area. The office frequented most often by our members is in Schaumburg.

PROSTHESIS

Here is an alphabetical list of some of the companies best known for their innovations in prosthetics, microprocessor parts, liners, orthotics, and related products:

7/16  College Park

7/16  Endolite

7/16  Ossur  

7/16  Otto Bock 

Amputee supplies and other goods

1/16  DryPro prosthetic, cast, and PICC line covers are durable and reusable, have non-skid surface for leg covers to prevents slips, completely waterproof, and come with a 90-day warranty.

1/16  Fred’s Legs, also known as SleeveArt®, makes covers for the prosthesis or knee sleeve. SleeveArt® was developed by a prosthetist who is himself, an amputee. His concept is that a prosthesis can be not only functional but also fashionable. Made from the highest quality Spandex and Lycra, the covers are colorful designs to express your mood and personality.

1/16  Village CycleSports has been selling bikes since 1976. Among the variety of bikes available are the comfort bikes (i.e. crank forward) which have wider tires, easy on-and-off, and allow the rider to have their feet on the ground while remaining seated. There are three retail locations: Arlington Heights, Barrington, and Elk Grove Village.

Government and assistance resources

FEDERAL:

1/16  Access Board – http://www.access-board.gov/
The Access Board is an independent federal agency that promotes equality for people with disabilities by developing and maintaining criteria for the built environment, transit vehicles, telecommunications equipment, medical diagnostic equipment, and information technology.  It also provides technical assistance and training on these requirements and on accessible design, and continues to enforce accessibility standards that cover federally funded facilities. 

1/16  Americans with Disabilities Act –  http://www.ada.gov/medcare_mobility_ta/medcare_ta.htm   
Accessibility of doctors’ offices, clinics, and other health care providers is essential in providing medical care to people with disabilities. Due to barriers, individuals with disabilities are less likely to get routine preventative medical care than people without disabilities. Accessibility is not only legally required, it is important medically so that minor problems can be detected and treated before turning into major and possibly life-threatening problems. The rules and regulations are outlined in this section.

1/16  Americans with Disability Act  National Network –  http://adata.org/
Through its ten regional centers, the ADA National Network provides information, guidance and training on the Americans with Disabilities Act (ADA).  Its services are tailored to meet the needs of business, government and individuals at local, regional and national levels. The Network is not an enforcement or regulatory agency, but a helpful resource supporting the ADA’s mission to “make it possible for everyone with a disability to live a life of freedom and equality.”

1/16  Disablity.gov – http://www.disability.gov/
This is the federal government site for people with disabilities, their families,  friends and organizations that serve them. The website is packed with info about disability benefits, health care, housing programs, community programs that help with finding a job, services for independent living, transportation, and more.

1/16  The U.S. Department of Justice Civil Rights Division – http://www.ada.gov/index.html    
Governing body of the website of Information and Technical Assistance on the Americans with Disabilities Act. The Laws and Regulations, Design Standards, Technical Assistance Materials, and Enforcement of the ADA are addressed within this site.  The  actual text of the Americans with Diabilities Act of 1990, as amended, is available on this site at  http://www.ada.gov/pubs/adastatute08.pdf A more readable version of the ADA Act can be found at 
http://www.access-board.gov/guidelines-and-standards/buildings-and-sites/about-the-ada-standards/guide-to-the-ada-standards  

1/16  U.S. Department of Labor’s Office of Disability Employment Policy – http://www.dol.gov/odep/
This site provides thousands of resources on benefits, civil rights, community life, education, emergency preparedness, employment, health, housing, technology and transportation for people with disabilities, their families, Veterans, educators, employers and others.


State of Illinois:

1/16  The Department on Aging’s Benefit Access Program –
This is the program that was formerly known as the Circuit Breaker Program. It allows for the Illinois Secretary of State’s office to provide for a reduced-fee license plate aimed toward senior citizens (65+) and persons with disabilities with specific qualifications. (In 2015 income limits $27,610 for a household of one, $36,635 for a household of two, and $45,657 for a household of three)
http://www.cyberdriveillinois.com/services/bap.html   Also available through the Department on Aging is the Ride Free Transit Benefit, also with the same qualifications, which offers free train rides. http://www.illinois.gov/aging/BenefitsAccess/Pages/Ride-Free-Transit-Benefit.aspx

1/16  Department of Financial and Professional Regulation – Elder-Disabled Services and Information – http://www.idfpr.com/EDS/default.asp
This is the department that investigates complaints of abuse, coordinates intra- and inter-governmental and private organizations, and conducts outreach awareness  and education.  

1/16  Illinois Department of Human Services – Client Assistance Program (CAP) – http://www.dhs.state.il.us/page.aspx?item=29978
These are the folks who help people with disabilities receive quality services by advocating for their interests and helping them identify resources, understand procedures, resolve problems, and protect their rights in the rehabilitation process, employment, and home services.  

1/16  Illinois Department of Human Services’ Aid to the Aged, Blind, or Disabled (AABD) – https://www.dhs.state.il.us/page.aspx?item=30370
This program provides cash and medical assistance to qualified persons. 

1/16  The State of Illinois Healthcare Portal’s Disability Services – http://health.illinois.gov/disability.html
Here is the place to get  information for people with disabilities and their families on health benefits for disabled workers and rehabilitation services.


Misc:

1/16  Need Help Paying Bills, Debt, and Mortgage?http://www.needhelppayingbills.com/index.html
This is a surprisingly full website of state and local programs in place to assist disabled low and medium income qualifying individuals with money issues related to their bills. In addition, the site offers info related to assistance with rent, mortgage,  medical and utility bills, debt counseling, charity assistance, low interest loans and student loans. For those looking to make some money to help with the bills, a list of work-at-home-for-pay ideas are provided. 

1/16  Nolo, a well-known legal website, has a section about Illinois Disability Benefits (SSI and SDI) at this address: http://www.nolo.com/legal-encyclopedia/illinois-disability-benefits-social-security-disability-insurance-ssi.html  Another section is entitled “Disability Secrets” with information related to the disability filing and appeal process in Illinois.  http://www.disabilitysecrets.com/disability-resources-illinois.html

1/16  Disability Resources is a non-profit organization established to promote and improve awareness, availability and accessibility of information that can help people with disabilities live, learn, love, work and play independently. The directory is organized by state. http://www.disabilityresources.org/ILLINOIS.html

1/16  The Illinois Legal Aid – Guidebook of Law and Programs for People with Disabilities 
This contains sections related to: General Considerations regarding a disability; Access to Services, Programs and Activities; Care of Children with Disabilities; Right to Confidentiality; Education; Employment; Government Benefits; Guardians and Representatives; Health Care; Housing; Independent Living and Productivity; Instiutional Care; Protection from Abuse and Exploitation; Telecommunications; Transportation; Miscellaneous Rights.  http://www.illinoislegalaid.org/index.cfm?fuseaction=home.dsp_content&contentID=784

1/16  Wounded Warrior Project (WWP) – http://www.woundedwarriorproject.org/
This not-for-profit organization exists to raise awareness and enlist the public’s aid for the needs of injured  service members, to help injured service members aid and assist each other and to provide unique, direct programs and services to meet the needs of injured
service members. WWP serves veterans and service members who incurred a physical or mental injury, illness, or wound, co-incident to their military service on or after September 11, 2001. WWP also serves the families of those veterans and service members.

Pastime - hobbies, fitness & sports

1/16  Adaptive Adventureshttp://adaptiveadventures.org/
Based out of Lakeland, Colorado, and Wilmette, Illinois, Adaptive Adventuresprovide progressive outdoor sports opportunities to improve quality of life for children, adults and veterans with physical disabilities and their families. With the help of a large dedicated volunteer base, these programs are made to order for individuals and groups with varying needs. Some of the activities include cycling, skiing, Nordic skiing, rafting, and kayaking. Assistance is provided to adapt the equipment, complete transfers, and do the activities.

1/16  Dare2tri Paratriathlon Clubhttp://www.dare2tri.org/
The Chicago-based Dare2tri Paratriathlon club serves youth, adults, and injured service members who have a physical disability such as amputation, spinal cord injury, stroke, Spina Bifida, or Cerebral Palsy as well as those with visual impairments or blindness. They serve athletes of all ability levels from beginner to elite. Athletes can compete in all three disciplines or be part of a relay team. Athletes receive the coaching, training, and support needed for these activities. Adaptive equipment is also provided as needed.

1/16  Disabled Outdoor Opportunitieshttp://www.dnr.illinois.gov/DOO/Pages/default.aspx
A few links on the Illinois Department of Natural Resources provides dates and places for those interested in hunting and fishing.

1/16  Disabled Sports USAhttp://www.disabledsportsusa.org/
This organization seeks to improve the lives of wounded warriors, youth and adults with disabilities by providing sports and recreation opportunities. Disabilities include those with visual impairments, amputations, spinal cord injury, multiple sclerosis, head injury, cerebral palsy, other neuromuscular/orthopedic conditions, autism and related intellectual disabilities.

1/16  Great Lakes Adaptive Sports Associationhttp://www.glasa.org/
GLASA was formed over 20 years ago to provide sports and recreational opportunities to children and adults who had a primary physical or visual impairment. At that time, few communities had the resources to offer the adaptations needed for quality recreational and sports programs for children and adults with those types of impairments. Today,  GLASA provides a wide range of daily programming for youth and adults ranging  from the beginner to the elite athlete. Many of these athletes participate in local, regional and national competitions.

1/16  Illinois Wheelchair Accessible Trailshttp://www.traillink.com/stateactivity/il-wheelchair-accessible-trails.aspx
Within the TrailLink website, developed by the Rails-to-Trails Conservancy, a list can be found of trails that are accessible to wheelchairs, including a brief description of the trail, ratings, and maps.

1/16  National Amputee Golf Associationhttp://nagagolf.org 
The NAGA and its regional associations promote golf for the physically challenged as a way for amputees and others to play golf despite any disability they may have. One- and two-day clinics, sponsored by hospitals and rehab centers, parks and recreational organizations, and prosthetic and orthopedic companies, get even the most novice of players into the game. Golf tournaments are organized and held throughout the year. NAGA members come from many areas around the world.

1/16  National Sports Center for the Disabledhttp://www.nscd.org/index.php
Based out of Winter Park Resort and Sports Authority Field at Mile High, the NSCD is one of the largest outdoor therapeutic recreation agencies in the world. Each year more than 3,000 children and adults with disabilities participate in our programs to learn more about sports and themselves. With specially trained staff and volunteers, and its own adaptive equipment lab, the NSCD teaches a variety of winter and summer sports and activities to individuals with almost any physical, cognitive, emotional or behavioral diagnosis.

1/16  RIC Adaptive Sports and Fitness Program – http://ricsports.org/
The Rehab Institute of Chicago (RIC) Adaptive Sports and Fitness Program provides a place for people with physical disabilities to reach their fullest potential through fitness, recreation, and competitive sports.

Join Our Community

meetings & fun_photos

Experience a meeting and meet our members! We meet every other Wednesday evening in Arlington Heights. Learn more about us on this site and on our Facebook page.

Upcoming Meetings:

Oct 18 - Kristin Kronn, PhD, OTR/L, ATP, will run a mini-clinic aimed at showing how evaluating a person's gait, and making minor changes where needed, can prevent injury and can significantly improve balance and endurance.
Buechner Room (1st floor)

Nov 1 -
Marissa Koscielski will speak to us about her work in the Notre Dame ESTEEM innovations program, an entrepreneurship master’s program focused on science, technology, and medicine-based innovations. For her thesis project, she is working to develop a medical device for amputation patients.
Buechner Room (1st floor)

Nov 15 -
Buechner Room (1st/ground floor)

Nov 29 -
NO MEETING

Dec 13 -
Buechner Room (1st/ground floor)

Dec 27 -
Buechner Room (1st/ground floor)

 

For meeting reminders, please: 

Text AMPUTEES to 84483 to receive alerts from Chicago Area Amputees (CAA)

or   Follow this link


Meetings are held from 7:00 - 9:00 p.m. For the address and a map to our meeting location, go to the Meetings page.

Contact Us:

Chicago Area Amputees proudly serves the entire Chicago Metropolitan Area.
Call 847.224.7752 or send us a message.

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Learn More

In the Resources Section:

 Info for the new amputee

• Where to get help  

• Local businesses and professionals providing services to the amputee 

Legal Assistance:

Looking for legal assistance or advice? Contact group member L. Bradley Schwartz. He is a fellow amputee who knows what it’s all about!

Free Consultation

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